2 - 4 months

2 months old

I have started to google for all her deformities, but didn’t know what those signs tell. Since there was nothing much we could do to fix her deformities, we thought we will leave them aside and concentrate on raising her. While keeping the 1) torticollis massage therapy; 2) right foot message; 3) double diapers daily, we have also kept the prayers and hope for the best to happen. We went to Tropicana Medical Centre (TMC) for her monthly pediatrician check and vacinnation because that is the nearest hospital.

Guess what? Evelyn had gain 1.22kg since birth,  at 3.32kg, 53cm. :)

 

Evelyn enjoyed her colourful toys :) She was bending her right leg because she cant open it wide apart due to her right hip dislocation.

3 months old

We were referred to another opinion who is also known as a specialist in pediatric orthopaedic - Dr Robert Panafold (Damansara Specialist - KPJ). Dr Robert asked not to worry about her right foot deformity, because Evelyn's right foot seemed to have normal shape, all her bones are in order and functioning well, and looks like a normal foot. The most worried should have been on her hip. So an ultrasound was ordered for Evelyn's right hip. Good news! It was confirmed that her hip was well located :)

We have been playing "Your baby can read" DVD and rythmes & songs since her 1st month. She loves them very much.  Look at her, she started to have a chubby face! She always smile and happy! She has started to babble when talk to :) am happy that she has grown up so much. I know there is a long way to go, and there are still alot to deal ahead for all her deformities, but we just want to focus on things we could do to raise her each day.

smile with tougue out :)

Look at her! She is kicking :)

4 months old

As she grow, we have noticed her uneven rib cage, her right back seemed to be uneven with a hump and abit mishappened, but we didn’t know what that was. Praying is the best thing we could do. We just have to keep a positive mind that everything will be alright.  Evelyn seemed to be very floppy like a newborn still, She has had a very poor muscles tone, her skin was soft.  She cant do rollover from her tummy to her back still. The worry have back again in our mind.

Those clicky sounds from her joints is getting more obvious. We have to handle her very gently to avoid joint dislocation. Her body is growing, but her legs were very small. I hope they are similar baby so I can refer to and know what is the underlying causes.

Apart from those deformities, her weight gain was extremely poor, she was far apart from the 3rd percentile growth chart. She had no head control at 4 months old.

Her legs are smaller in proportion to her head

Quote : "I believe God is managing affairs and that He doesnt need any advice from me. With God in charge, I believe everything will work out the best in the end. So what is there to worry about." - Henry Ford

 

Evelyn weighed at 4 months old : 4kg, 57cm