The past 2 years was terrified, from the moment the pediatrician told us her deformities, followed by her OI diagnosis, then the knowledge on how to care OI baby, her developmental delay, the frustration we have dealt with doctors, therapist, orthotics, specialist, physical therapy (PT) training on our own, pam drug treatment/ doctor appointments routine, and many more. OI is really a scary thing. There are lots of uncertainties so we really don’t know what to expect next. Her scoliosis (spine curve) is the most scary diagnosis, from zero degree at birth to 38 degree at 18 months old in S curve, and yet the doctor said it would be a progressive curve - this is something bad to hear. We have no other option but to live with it and accept the way it is.
We were told that she would never walk - but just recently (22mo), Evelyn started to cruise furniture with support, pull to stand with support, stand/ walk with support. Her daily PT is something that we cant be ignored, because every little effort do helps. We are hoping that she keeps progressing and gets stronger each day in meeting her major milestones. A good quote from Master Zheng Yan "Never under-estimate yourself, because human have unlimited potential". We are proud of her learning attitude, shes love learning and keeps learning everyday. She discovered fun in learning. We truly believe that she would do better in her path with her own way.
To Evelyn :" On the 23th May 2011, you enter into our world and our live changed forever..... You teach us to be strong, be patient, be brave, be happy, be positive, be gentle, be calm, be broad-minded, be courage, be energetic, be loving, live life to the fullest, and more importantly - appreciate small little thing in life. Your change to us is just countless, and we are what we are now to be a better person". WE LOVE YOU FOREVER!!!
We were told that she would never walk - but just recently (22mo), Evelyn started to cruise furniture with support, pull to stand with support, stand/ walk with support. Her daily PT is something that we cant be ignored, because every little effort do helps. We are hoping that she keeps progressing and gets stronger each day in meeting her major milestones. A good quote from Master Zheng Yan "Never under-estimate yourself, because human have unlimited potential". We are proud of her learning attitude, shes love learning and keeps learning everyday. She discovered fun in learning. We truly believe that she would do better in her path with her own way.
We celebrated her birthday 2 weeks earlier with my family together with mother's day. It was a great party, we enjoyed ourselves very much.
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| Look at her birthday cake & presents - She was excited!!! |
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| Birthday party with her girly cousins |
Here is a video clip I created for her to recap from birth to 2. Enjoy!
Evelyn weighed at 24mo : 6.95kg, 75cm
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