Evelyn has Osteogenesis Imperfecta (OI)

Evelyn has Osteogenesis Imperfecta (OI)

Monday 6 May 2013

New milestone but admission again

Evelyn had getting more active, her arms were stronger, she did tummy time for the first time at 10 months old. She can only hold it for a minute or two. Although it was a slow process but we were very much happy to see her accomplishment.


Tummy time at 10 months old for the first time

We put her in infant car seat for feeding, she loves seating on it for watching TV too. However we were not sure if that was the right posture for her at that point. It maybe harmful to her spine. She had been sick for lying down on her back at all time. So we thought sitting with this support gave her a better viewing.


Evelyn sitting in the infant car seat



At her 11 months old, she admitted to UMMC for measles. It started with fever for 10 days, then followed by rashes all around her body. We initially thought the rashes was because of medication alleegy. So we brought her to few pediatric clinic, as usual, paracetamol and antibiotic have been given but we did not see any recovery still.   On top of these, she was having a bad cough and flu too and breathing difficulty. The fever had gone up high at 38.5' celcius. We brought her to pediatrician emergency  at UMMC. The doctor advised to admit right away.


Daddy is feeding her through tube


During her 10 days stay in the hospital, she received a nebuliser and phlegm suction 6 times daily. An oral antibiotic was not useful at that point, so she required antibiotic infusion 4 times daily. Due to her breathing difficulty, she was given an oxigen tube through nose. Another tube had inserted to her throut through mouth to provide milk intake. Body temperature was being monitored closely every 3 to 4 hours. We had wiped her with wet towel on and off to keep her body hydrated to avoid high fever. Few blood and stool had been taken for bacteria and virus test. 

It broke my heart to see Evelyn in such a pain and suffering. She has had enough, with pnuemonia admission at 6 monts old, and meascle attack again at 11 months old. We prayed for her speed healing.





"Suffering becomes beautiful when anyone bears great calamities with cheerfulness, not through insensibility but though greatness of mind". -- Aristotle







Evelyn weighed at 11 months old : 4.95kg, 69cm












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