On her 1st day of life, the pediatrician told us her loads of deformities, ie: she was born with right torticollis (head cant turn to right due to tighten muscle on neck), right foot deformity (right seemed to be turning outward), right hip dislocation, mild bowing of both upper femurs (seen from x-ray), very loosen joints on both knees, leg length discrepancies (right was measured slightly shorter), uneven rib cage (right seemed to be misshapped with a hump on her right back). We were shock of the bad news because we have been expecting a perfect & healthy baby. During my entire pregnancy, our O&G doctor had never told us any abnormality. It was very overwhelming to learn that my 9 months pregnancy turned up abnormal.
Despite her loads of birth defects, her respiratory was still functioning well. So she did not require to stay in ICU. However she had jaundice on Day 2 so they put her on the jaundice nursery care until the Day 4.
So Evelyn came home on Day 4, she was very small and tiny as we expected. She did not cry much like a normal baby. Her appetite was extremely poor, she hardly latch on so I pumpep out my milk in a bottle. He took 2oz every 2 hours.
We can hear her clicky joints whenever she move her legs and hands. But we didn’t know what's happening. She cant move her right leg because of the hip dislocation. We were told to apply double diapers for her to help her both hips open wider so the socket of her right hip can be locked naturally. The physiotherapist from the hospital she was born have taught us the way to message her torticollis, which was to pull her head upwards, then to the left, then bend to the right. We have repeated this every morning & night.
On her 2nd weeks of life, we were referred to see Professor Sengupta from UM Specialist Centre (UMSC). We have told that nothing can be done at that point of time but to massage her foot deformity daily from home.
Her loosen joints especially on her knees really worried us, we have never seen such a baby before. All we have in our mind was to get more specialist advice.
So on her 3rd week of life, we were referred again to the second opinion at Tropicana Medical (TMC) to see Dr Nawar who is known as orthopaedic specialised in children. Dr Nawar applied serial casting on Evelyn's knees hoping her loosen knee joints can be straighten. A week later, Dr Nawar said Evelyn has loosen liagament that caused to her loosen joints, not only her knees, but her whole body joints. She was born with it. Serial casting may not be the cure, he advised us to wait her grow and see.
We went home and pray hard for a miracle.
Quote : "Miracles start to happen when you give as much engergy to your dream s as you do to your fears."
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